Dercum Disease (Health/Conditions_and_Diseases/Skin_Disorders/Dercum_Disease)



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Dercum Disease

Dercum's disease, Dercum disease, Adiposis Dolorosa, Morbus Dercum, Adiposita Dolorosa, Fettvävsreumatism, painful fatty tumors, lipomas, weakness, obesity. This category is about a disease that has been identified for over a hundred years, yet no recent research exists on the cause of it. It was originally named by Dr. Francis X. Dercum in 1892 as adiposis dolorosa. It has since picked up his name as an identifier and both names seem to be equally popular. It generally occurs in women (less 16% are men), between the ages of 25-40 (in Sweden) or 40-65 (in the USA). They cite obesity as a cause, but they have it backwards -- the disease actually causes the obesity -- and weight reduction efforts have little effect on the pain or the obesity. Two articles has attributed it to an autosomal dominant genetic disease, but there is no explanation why it can be benign in some and so debilitating in others. There is no cure, and no easy way to diagnose that a person has this disease. The key(s) are painful fatty deposits (benign lipomas, either encapsulated or diffuse), where the pain has been evident for three (3) months or more. All treatments are palliative -- treat the symptoms -- ease the pain, suction out (via liposuction) or excise the more painful tumors (remember they are benign), and counsel the patient to be able to endure the never-ending pain. Research into the cause or the stimulus that worsens the disease is needed.

Entries




Wikipedia - Adiposis Dolorosa   http://en.wikipedia.org/wiki/Adiposis_dolorosa
Offers a descriptive article of this rare disease, also known as Ander's disease or Dercum's disease.



Dercum's Disease   http://dercums_data.tripod.com/
Discusses the symptoms, personal stories and research that has been done in the study of this disease.



Dercum's Disease - From a patient   http://www.medicalnewstoday.com/index.php?newsid=5253
An account from Denmark, in Medical News Today.



eMedicine: Adiposis Dolorosa   http://www.emedicine.com/derm/topic839.htm
Provides an overview of diagnosis and clinical features.



Lipomatosis Dolorosa   http://www.dstressdoc.com/dercum's.htm
Describes the disease and suggests a possible dietary treatment.



My Illness   http://www.nunnie.com/dercums.html
Personal account of one individual living with Dercum's Disease, and the path she took to diagnosis.



Corticosteroid-Induced Juxta-articular Adiposis Dolorosa   http://members.tripod.com/dercums_data/greenbaum.html
Article copied from the Archives of Dermatology discusses a case of Dercum's Disease in the knee that was apparently caused by corticosteroid usage.



Dercum's Disease   http://dercum.dk/
Describes the disease and provides links to other sites.



Dercum´s disease - a frequently overlooked disease picture   http://dercum.net/
German researchers present a case report describing methods used to treat the pain associated with this disease.



Dercum's Disease or Morbus (Mb) Dercum   http://hem.passagen.se/dercum/English.html
Information from the Swedish Dercum's Society, courtesy of Dr. Fagher, one of the current experts in the disease.



The Dercum Society   http://dercumsociety.com/
Describes the disease and its symptoms. Also provides suggestions on how to prepare for a doctor's visit so that the right diagnosis is made.



Portrait of a Medical Enigma   http://members.tripod.com/dercums_data/brorson.html
This is an article by Drs. Brorson and Fagher on Dercum's Disease. The first part of the article is a biography of Dr. Dercum followed by a detailed description of the disease.



Yahoo! Groups: Dercums Disease   http://groups.yahoo.com/group/dercums_disease/
Discussion board provides a means of sharing experiences and ideas.

Related categories


Lipomas Slow-growing tumors that come from fat cells.
Madelung's Disease Madelung's Disease (also called Multiple Symmetrical Lipomatosis [MSL], Benign Symmetric Lipomatosis or Lanois-Bensaude Syndrome) is a metabolic condition characterized by the growth of fatty masses

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